Saturday, 21 November 2015

Our New Sweat Shirts From SamualJacks T-Shirt Shop


Here we all are, modeling our new sweat shirts. We got a fantastic deal from Samuel Jacks T-Shirt shop, you can see the things they do here;



Steve helped us to get exactly what we wanted and he did a wonderful job on our logo, this was hand made and the members wanted to make sure that it was sewn exactly as it had been drawn, Steve worked hard on these and we got an excellent finish. We are all so very happy so a very big thank you to Steve for all his work.


 Here we have Sam, Tina, Joanne, Paul, Des, Shane, Leisa, Helen and Kieran
All the same people except the third one is now Dave

Some of the other members did not want to be in the picture but they are now wearing the shirts around town.

We are also using these as a fund raiser to support the group and its work so if anyone would like one please talk to Dave

Wednesday, 28 October 2015

Autumn 2015 Update


The Norfolk Clinical Commissioning Group(CCG) decided to stop our funding after forcing the group to become a registered charity so that, as they told us, the CCG would be protected. Shame that was not a two way street as being registered with Charity Commission may cause us additional expenditure. Previously WNSAP had been recognised and registered by the Customs and Revenue Services to the satisfaction of that service.


As a supporter and volunteer I have been asked by the Trustees of West Norfolk Self Advocacy Project to write a bit for the blog. So more about the group.



The members have held a lot of meetings to work out what they wanted to do. The first thing was to make sure that WNSAP continued to provide support to vulnerable people in west Norfolk, that is those who have learning disabilities and mental health issues. Members wanted to make sure that people who get no help or support from the Learning Disabilities Team at Social Services had somewhere to get help and support.



Since the NHS funding stopped we have had an amazing three months with:



  • an increase in people with disabilities calling for our services
  • an increase in family members and friends calling for our services
  • an increase in volunteers offering their help and support
  • an increase in support being offered by local businesses and companies
  • and of course our wonderful worker, David, who we were forced to make redundant continues to volunteer with WNSAP as the Senior Adviser



Once the word got around of how WNSAP has been treated by Norfolk NHS, the response has been wonderful with the increase in the volume of support.



For example a local gentleman dropped by to see for himself what we do because he had heard a lot about the group from a neighbour. He spent the whole session with us chatting to all the members there that day. When he left he made a huge donation to the group.



Another example is that two people who had previously visited the group said that they would set up and run a market stall for us at a Sunday fair, they paid for the stall and provided things for sale, ran the event and donated all the money raised to WNSAP.



Another example has been that a crafts group has not only donated materials for members to make things but has said that for the next year they will give us some of the things they manufacture for us to sell.



I hope that gives you some happiness at our survival. As there is so much good news and interest within the local community the members and supporters say that they will post on the blog more often.


Some Work On Easy Read Documents

We did some work with a lady called Susan Buell, she had been doing research on a thing called Easy Read. This is something that councils and doctors like to use for people who can not read or who have problems reading and understanding.

For a long time many of us had said that this was no good and that the main problem was people thinking that there was one way to do something and that everyone had to just suck it up and use it. We were very happy to work with Susan and here is a link to the article from the magazine called Llais.

We are the very first group pictured.



Monday, 20 July 2015

A Sad Update and how we will fix it.

Hello everyone,

Shane and me were going to tell you all about the very good work we have done in West Norfolk because we have been working very hard and doing a good job helping lots of other people. But we got an email from the Clinical Commissioning Group telling us that they are not going to support us any more after our grant runs out in September.

We are all upset because we do lots of work supporting people in West Norfolk and it looks like the Clinical Commissioning Group are only interested in funding stuff in Norwich and we all in West Norfolk can all get stuffed. Because it doesn’t matter how hard we work or how good we are with managing our money or how many people in West Norfolk will have no one to help them and we all know that the handicapped like us are always at the bottom because those in power and holding the purse strings don’t care unless you have a personal budget.

This has all happened to us before in 2003 when people tried to close our group down and they failed that time and they are going to fail again. Last August the Clinical Commissioning Group forced us to become a registered charity and we take this very seriously and we have done lots of training about our responsibilities so this is what is going to happen.

We are going to have to make David, our worker, redundant at the end of July but we have talked to him about this and he will stay on as our adviser doing voluntary work. He did this for us for 7 months in 2003 and he says he will do it again to make sure we have some support. We will go on holding a weekly meeting every Friday in Kings Lynn and the other groups will carry on as normal while we talk about what else we can do. Keep watching our blog and we will write again.

Shane Malster, Chair and Paul Norman, Treasurer

Tuesday, 23 June 2015

Come to Hunstanton


West Norfolk Self Advocacy Project has been working hard to start a new group and we are now ready to invite everyone to come.

We have had members in Hunstanton since the beginning of the group, one of the members who lives there started SAP


We need to work out what will be the best time and day to meet so the first open coffee morning will be on Wednesday 15th July at 12.30 in the basement of the Hunstanton Town Hall.

Each session will be £2.00 to cover the cost of the tea and coffee and pay a bit towards hall hire.

We hope to see as many people from the Hunstanton area as possible.

Come along if you live or work in Hunstanton and you can help make the new group.

Simon and Paul

Discussing Hunstanton Group

Rose and Paul discuss the new Hunstanton Group